Our Philosophy

The CAB members were asked the 3 questions below:

1. How has HIV affected your life and what motivated you to become an advocate?

2. What would an HIV cure mean to me and my community?
3. What scientific and community engagement work excites me the most about the DARE collaboratory?

Please click on the CAB member photo or name below to see their full response.

AIDS activism called to me when my husband and so many of my dearest friends were diagnosed with AIDS, became sick and died, some in as little as three days. I was a party girl on the disco circuit. I had loads of gay friends all over the country. Overnight people who I loved and who had cared for me and helped me were dying from AIDS in droves. I just couldn’t leave them when they needed me, and I believed that if the government was forced to allocate enough money at HIV research, my loved ones could surely be saved. I was just the girl for the job.

Finding an HIV CURE would be transcendental. It is more than the provision of a curative agent, it would be the culmination of a movement that started with loss of life and staunch advocacy and leadership of a few brave souls who may or may not have lived long enough to see it.

​A cure to HIV would mean the deepest fulfilment of humanity's endeavour to love and care for one another. It would mean that fear and stigma of HIV had been defeated, and the untouchables could again be held embraced and loved fully again.

Conceptualizing a cure for something that has become such a part of my sense of self is difficult.  If a cure wipes away the disease, will the illness remain?  Will a cure be something that we all have access to and is delivered to us in a way that disrupts the traditional disparity-ridden care systems of today?  An equitable and accessible cure would mean the ultimate opportunity to reshape the relationship of communities with their healthcare system for generations. 

I believe very strongly that to end the pandemic we need both an effective vaccine and a cure that is relatively easy to administer and not particularly difficult for the patient. In the meantime, we need highly effective treatments and continuing research into all aspects of HIV/AIDS and related fields such as immunology.

I really believe in “nothing about us without us“ and I think that patients’ perspective sometimes is more important than the raw data. So, I really appreciate the exchange with other activist and the researchers in the cure area and hope that this collaboration will prove very valuable.

A cure for HIV would mean freedom and a testament to my own resiliency and humanity. For my community it will also mean freedom but most probably a new challenge to have access to it. Health disparities must be dealt with if we want a cure for all.

The development of an effective, globally accessible HIV cure would be a massive achievement capable of transforming millions of lives for the better. It represents the next step forward from antiretroviral therapy, which has already had profound effects in terms of reducing morbidity, mortality and transmission.

Being so close to great minds and hopefully bringing new ideas as a patient and long-term survivor. There are so many misconceptions in the HIV community about the current state of HIV cure research. I hope to help to change that. I also hope to help with fast enrollment of studies.

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